Help another Haemo Mummy
I got a call from my Haemo nurse Alison yesterday, I was surprised, it was nice to chat to her about Elliot with out having any concerns for once! I was also touched when Alison asked me if I would talk to another mummy who has just had her son diagnosed with Severe Haemophilia A just like my little man, I thought wow, yeah it would be great to help another mummy with the same worries and concerns I had 17 months ago, so I got the new mummy's number and had to think a little about how to break the ice with a text.
I phoned up mummy, Kate, and had a great conversation for a good half an hour about Elliot and how the condition has affected us, I told her everything I could think of that I would of like to of known. The main thing is to not think about Haemo until her little baby Zak starts to crawl as he is only a week old and can not get up to much mischief yet (ah the fun is all yet to come). Kate was lovely and I feel great that I could have the opportunity to share our life experiences and hopefully calm the initial worries you get when you hear the diagnosis, (it was just like talking to myself, Kate had all the same questions I had).
I hope you have a look through my blog Kate as I have tried to document all our Haemo adventures not only does it help me to write it all down but also other Haemo families might find understanding and comfort by reading it as I struggled to find anything at my time of research.
Bag Essentials
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| Mini First Aid |
Everywhere I go I take this little kit with me, I keep it in Elliot's change bag just as important as his factor 8. The instant Ice packs are awesome for bangs and bumps when there is nothing else to hand, to be fair I have had to whip it out more for other peoples children. Get a kit like this from amazon. (Better to have it and not need it)
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| Great for instant cold relief on bumps |
These strips are mint because they stick to the skin so when your little boy hurts his Head/Knee and does not want to sit and have a cold pack held on his skin you can just stick this on the affected area and he can go running around forgetting they have a cold strip stuck to them, this was my mums genius idea. If they are ever on offer in the shops I stock up, also you can reuse them a few times just keep the back you peel off and stick it back on when done hey presto. I used one today at playgroup when I saw Elliot teary eyed with a red mark on his head so I stuck one on his head for 10 Min's as he wondered around playing again no problems.
